Links

Parkinson’s Specific

Parkinson’s Victoria

Provides local support and access to further resources for all living with Parkinson’s and their carers, in Victoria.

Parkinson’s Australia
Directs you to each state Parkinson’s peak body organisation which provides general Parkinson’s information on symptoms, treatments and living well with Parkinson’s.

APDA National Young Onset Centre
The American Parkinson’s Disease Association (APDA) has a centre specifically for people living with Young Onset Parkinson’s. The National Young Onset Centre provides a website with great information available.

Parkinson’s UK
The Parkinson’s UK website is another wonderful resource for reliable Parkinson’s information. They also have a page dedicated to information for younger people living with Parkinson’s.

The Cure Parkinsons Trust

The Cure Parkinson’s Trust has one bold aim – to cure Parkinson’s disease.

The charity funds innovative projects and inspirational scientists with the aim of building momentum towards a cure.  It brings scientists together to improve communication and promotes collaboration between researchers. Founded by patients, the Trust is passionate about involving patients in this vision.

“If we all start hoping for a cure, believing in a cure and talking about a cure, then perceptions will change.  Already there are pioneering new methods which are not so much treating Parkinson’s as reversing it. We are convinced that although the road to a cure may be about money and science, the drive for a cure will be powered by public opinion.  With your help we can effect this change.”

Sir Richard Nichols, Sir David Jones, Air Vice Marshall Michael Dicken, Tom Isaacs, co-founders of The Cure Parkinson’s Trust

National Parkinson’s Foundation (USA)
This website contains lots of information about Parkinson’s but of particular interest, they have an extensive video library of recorded webcasts and seminars on a great range of topics

Michael J Fox Foundation
The Michael J Fox Foundation is dedicated to funding research projects into finding a cure for Parkinson’s and improved treatment options as part of this goal. There are lots of updates on research projects funded by the foundation.

World Parkinson’s Congress (WPC)
The World Parkinson’s Congress is an international event which takes place every three years and offers something for the entire Parkinson’s community – from people living with Parkinson’s through to nurses, allied health professionals and top researches. This website explains more about the importance of the congress and initiatives that have stemmed from it.  This is where you can sign the Global Parkinson’s Pledge to show your support for improved awareness and funds for Parkinson’s.

 

General Community

Beyondblue – 1300 22 4636
beyondblue works to reduce the impact of depression and anxiety in the community by raising awareness and understanding, empowering people to seek help, and supporting recovery, management and resilience.

Lifeline – 13 11 14
24hr free phone counseling service

Gambler’s Help – 1800 858 858
For a small number of people, Parkinson’s medications can heighten the desire to gamble and cause significant stress to the person affected and their families. It is important to seek advice from your neurologist immediately and contact Gambler’s Help for assistance and support as well.

Maurice Blackburn Employment, Super and Advice line – 1800 196 050
If you are thinking of stopping work, Maurice Blackburn have trained staff who provide a free advisory phone service to let a person know of their rights, obligations and potential entitlements

JobAccess – 1800 464 800
JobAccess is a comprehensive, easy to use website and a telephone information service that provides advice on disability employment related matters. It offers help and workplace solutions for people with disability and their employers.

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